A Closer Look at Spaulding's Rehab Team

A Closer Look at Spaulding's Rehab Team

A Closer Look at Spaulding's Rehab Team

In a unique setup that dates back to a chapter founder doubling as the director of the rehab program at Boston’s Spaulding Rehab Hospital, the…

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SH-SCI Healthcare Lecture Series

SH-SCI Healthcare Lecture Series

Healthcare lectures for those with Spinal Cord Injury

As part of our Model System of care, we are striving to provide the best quality of information to our patients. In these efforts, we…

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Spring Adaptive Sports

Spring Adaptive Sports

Another great season ahead for Adaptive Sports!

With warmer weather comes another great Spring/Summer season of Spaulding's Adaptive Sports program!

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Learn More about SH-SCI Research

Learn More about SH-SCI Research

Are you interested in learning more about what is happening at SH-SCI?

To learn more about research happening at SH-SCI - please contact us via our web form. We are happy to answer your questions!

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Improving Bone Health in SCI - Comparative Trial

Improving Bone Health in SCI - Comparative Trial

This study compares FES Rowing and Zoledronic Acid on bone loss in SCI.

People with serious spinal cord injuries run a high risk of bone fractures. This study aims to see if adapted rowing, using electrical stimulation of…

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Sclerostin and Bone Loss

Sclerostin and Bone Loss

Sclerostin is being investigated as a biomarker for bone loss in patients with SCI

This study looks at bone health in people with SCI to determine the relationship between certain proteins and bone loss during the acute phase of…

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Exercise and Breathlessness

Exercise and Breathlessness

Breathlessness (dyspnea) can result in decreased ability to perform ADLs or other activities - such as exercise.

Exercise and Breathlessness (SRH) In chronic SCI, muscular weakness and paralysis result in a decreased ability to perform activities of daily living (ADLs), and a…

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Non-Invasive Stimulation for Pain After SCI

Non-Invasive Stimulation for Pain After SCI

Researchers are looking at the effects of transcranial direct current stimulation (tDCS) on pain.

This study is investigating a non-invasive method of brain stimulation (Transcranial Direct Current Stimulation- tDCS) for the relief of pain due to a previous spinal…

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Breaking News

 

December 03, 2014

House approves new savings accounts for people with disabilities

Passed by a vote of 404-17, the bill known as the ABLE Act is intended to help Americans with disabilities pay for the associated expenses, including medical cos

ts and finding employment. Twelve Democrats and five Republicans voted against the measure. The Senate companion bill has 74 co-sponsors, indicating that it would pass easily in the upper chamber.

Rep. Ander Crenshaw (R-Fla.), the measure's sponsor, said establishing savings accounts for people with disabilities would help them grow their money in a similar way as retirement accounts, like an IRA or 401(k).

"It will bring peace of mind to millions of American families who live with disabilities every day," Crenshaw said.
Rep. Chris Van Holl
en (D-Md.) said the savings accounts would also help families with disabled children.
"This ABLE Act can help ease that financial burden and help assist families in some small way, in ensuring that their children receive the love and care they deserve," Van Hollen said.
House GOP Conference Chairwoman Cathy McMorris Rodgers's (R-Wash.) seven-year-old son who has Down syndrome, Cole, was on the floor for the vote.
"It will empower millions – like my son, Cole – with the opportunity
to have a better life.  And that is why we are here," McMorris Rodgers said.
Eligible individuals for the accounts must be disabled before the age of 26 and receive benefits from the Disability Insurance or Supplemental Security Income programs.Creating the savings accounts would increase the deficit by $2.1 billion over the next decade, according to the Congressional Budget Office. Consequently, the bill contains several offsets, including changes to civil tax penalties and the Inland Waterways Trust Fund financing rate.

But some Democrats opposed the bill due to offsets that make changes to Medicare.

 

Adaptive Sports Program

The Adaptive Sports Program at SH-SCI provides therapeutic recreational activities – including sailing, rowing, bicycling, and skiing – for members of the disabled community. Our trained staff identifies activities most appropriate for each participant. For more information, please click here.

 

The Department of Conservation and Recreation (DCR) of Massachusetts also offers many selections for adaptive sports and summertime activities. Check out their brochure below!

 

icon DCR Universal Access Brochure

Save the Date! - Lecture Series

Knowledge in Motion 
Evening Lecture Series

Coming Soon in Early 2015!

 

When: TBA

Time: 6:30-8:00pm

Location: 300 1st Ave, Charlestown, MA 02129


 

 

News

 Try a new Adaptive Sport! 

SRH's Winter Programs 2015

 

 

NEW Ski Club & TONS of Sled Hockey this year!

Clickhere: http://www.spauldingrehab.org/assets/Spaulding_pdfs/sascwinter14-15.pdf

 

 


 

KNOWLEDGE IN MOTION - View our last lecture from November:

 

On November 13th, the Spaulding-Harvard Spinal Cord Injury Model System and the New England Regional Spinal Cord Injury Center Model System hosted a lecture and webcast named:

Integrated Care for People with Spinal Cord Injury

with Michael D. Stillman, MD, Assistant Professor of Medicine and Neurosurgery and Steve R. Williams, MD, Professor of Neurosurgery, both of University of Louisville School of Medicine, Frazier Rehab and Neuroscience Center SCIMS. They highlighted the unique Integrated Care Clinic available in Louisville for people with SCI. There, patients with SCI can receive a comprehensive evaluation and overview of their health. The evaluation is a multi-day series of tests with specialists in Urology, bone health, and physiatry.  We hosted about 70 attendees in person with dinner in Spaulding's Cafeteria with 220 "webcastees" attending our lecture virtually from United States, Canada, India, the United Kingdom, and Morocco!

News (continued)

Meet our Peer Mentors with SCI

 

Link: http://sciboston.com/peer-mentoring/meet-our-peer-mentors/

 
 

SPAULDING COUNCIL ON DISABILITY AWARENESS

 

Beyond Ramps: Social Design for Accessible Cities

Sara Hendren is an artist, design researcher, and writer living in Cambridge, Massachusetts. Her work has been exhibited in the US and abroad and is held in the permanent collection at MOMA (NYC), as well as appearing in the Boston Globe, The Atlantic Tech, FastCo Design, and on National Public Radio (US), among others. Sara teaches socially-engaged design practices, adaptive + assistive technologies, and disability studies for engineers-in-training at Olin College. She writes and edits Abler, a syndicated column focusing on material and digital artworks that enhance concepts of inclusive design and accessible architecture.

WHEN

Wednesday, January 14, 2015

6-8pm 

Lecture: 6-7pm

Reception and hors d'oeuvres to follow   

WHERE: 

Spaulding Rehabilitation Hospital

Conference Center A/B

300 First Avenue

Charlestown, MA 02129

WHEN

Wednesday, January 14, 2015

6-8pm 

Lecture: 6-7pm

Reception and hors d'oeuvres to follow    

WHERE: 

Spaulding Rehabilitation Hospital

Conference Center A/B

300 First Avenue

Charlestown, MA 02129

 

Please RSVP to Colleen Moran at cmmoran@partners.org
by Monday, January 12, 2015.  

*Public transportation is highly encouraged. Limited hourly parking available at Building 199 and accessible parking available on-site.

  

 
 
 

 

Current Research Publications

  • Related Articles

    Hybrid functional electrical stimulation exercise training alters the relationship between spinal cord injury level and aerobic capacity.

    Arch Phys Med Rehabil. 2014 Nov;95(11):2172-9

    Authors: Taylor JA, Picard G, Porter A, Morse LR, Pronovost MF, Deley G

    Abstract
    OBJECTIVE: To test the hypothesis that hybrid functional electrical stimulation (FES) row training would improve aerobic capacity but that it would remain strongly linked to level of spinal cord lesion because of limited maximal ventilation.
    DESIGN: Longitudinal before-after trial of 6 months of FES row training.
    SETTING: Exercise for persons with disabilities program in a h [...]

National Institute for Disability and Rehabilitation Research

Our Spinal Cord Injury Model System is funded by the National Institute of Disability and Rehabilitation Research (NIDRR). NIDRR is a component of the Department of Education - Office of Special Education and Rehabilitative Services (OSERS) whose main mission is helping to improve the lives of individuals with disabilities.

 

National SCI Database

The National Spinal Cord Injury Database has been in existence since 1973 and captures data from an estimated 13% of new SCI cases in the U.S.  As part of the SCI Model System, SH-SCI contributes to this database. The NSCISC has recently released 2013 "Facts and Figures" from the National Database.

NSCISC - Facts and Figures 2013

Knowledge Translation Center

Connect with the Model Systems Knowledge Translation Center
The Model System Knowledge Translation Center (MSKTC) has many resources available about the Spinal Cord Injury Model System, including helpful flyers and handouts about injury - and also the contact information for Model System sites nationwide.

On their website, they  list information for both consumers, and clinicians - including publications from the national sites. The MSKTC can also be found on Blogspot and Facebook.

Spaulding-Harvard Spinal Cord Injury Model System

SCI Resource of the Month

January 2015 - make texting & websurfing a little easier...

Nothing fancy nor glamorous, a company named "Snake Clamp" makes attachable, adjustable clamps and mounts for using electronic devices, making them usable while in your chair. It could give you that free hand you always need!

Other attachments could perhaps help a quadriplegic mount a camera, a door opener, or provide a stable base for typing on a smart phone, etc. Check it out!! 

Here is the resource page http://snakeclamp.com/Category/ipad-snakeclamp-stand-holder-bracket-mount-flexible-gooseneck-arm . Additional attachment devices can be seen here: http://snakeclamp.com/Category/smartphone-snakeclamp-desk-stand-mount-holder-flexible-goosneck-arm

HAPPY NEW YEAR!!!